• Learn the basics about MS.  The Mackenzie Institute has a free six-week online course which is suitable for anyone with an interest in MS.  It has a balance of clinical information and patient experience.
  • Remember that a diagnosis of multiple sclerosis can take months or years to adjust to, even if symptoms have been experienced for a long time
  • Listen and support, and remember that you cannot ‘fix’ their MS 
  • Offer to attend appointments with them
  • Be open to plans changing, for example if fatigue sets in before a planned engagement
  • Ask them what they need, don’t assume 
  • They are the same person and it’s unlikely that they will welcome any pity.  They have a new (unwanted) passenger on their bus, which is MS!
  • Remember that no two days are the same when living with MS.
  • If you are employer to someone with MS, let them know that you support them and listen to what they need.  MS Auckland Community Advisors can provide guidance such as funding available for workplace adjustments
  • Utilise the advice, support, referrals and more available from MS Auckland  
Translate »